Sunday, October 30, 2011

Quick update...

I just wanted to check in with the blog...I know it's been a while since we've posted here...medically Mini has been stable...she's gone back to school and is doing AMAZING!  A's and B's in every subject...and she loves school...she works hard...and she get's it...It has been a loooooong educational journey as well... you may or may not know that Mini had two strokes and two brain surgeries when she was 6 & 7 at which time she was diagnosed, dyslexic...the doctors are not sure what came first.  Mini attends an amazing school for kids with LD...where the entire staff is invested in the kids success.

This photo was taken two weeks ago when Mini and I went to the Bronx Zoo.

The New York Times did a nice piece on Sickle Cell Disease back in March of 2011.  They have audio of people discussing how they live with their disease...and parents discussing how they deal with their kids disease.
CLICK HERE to listen.

It's coming up on the one year anniversary of Mini's transplant...and we will finally find out who her anonymous donor is...excited!!

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