National Donor Day

Today, February 14th is National Donor Day...

Mini is 3 years post her un-related bone marrow transplant curing her of Sickle Cell Disease and would love to say "Thank You" to her donor...

who has not given us permission to contact him yet...sad face.

We look forward to the day that happens...and we know we will meet the person who changed my daughter's life...until then...We just want to share this with him to express our gratitude...

To our HERO.

 Mini, 2 years ago...in transplant...

Mini today, 2 years post transplant...

Please, become a bone marrow donor it could CHANGE a Life...

To learn more click here.

The Flu is Here

So...Mini ran a fever last week. We ended up in the hospital for a blood work and a round of IV antibiotics...just in case...Two days of that and mini still had a temperature of 102.8....ugh!

Mini was finally diagnosed with the flu after an evening run to the ER...we were sent home with a prescription for Tamiflu....and isolation.

So...Mini cannot return to school until she has been without fever for 24 hours...I had to reschedule Mini's MRI...hopefully she will be well enough to take a scheduled neuro-psych exam next week....Ugh! Last week was just a quick reminder of the life we used to live before Mini's bone marrow transplant...not fun.